MyBopsBlog: Wear "flops" and buy "melelelems".

Friday, March 21, 2008

Wear "flops" and buy "melelelems".

James has enjoyed his week at home during spring break. His curiosity has been at its peak. Escaping regularly to different parts of the house where no one sees him, he has plundered with abandon. His mother has had the flu, and even in her weakened state, she is running around cleaning up after our own little guy. His path of discovery has been like having both Lewis and Clark in the same body. His latest adventure was to go downstairs to the basement and pull out big sister's guitar and other electronic music gear. From there he ventured into the Christmas decor storage area and decided to reintroduce some holiday cheer into the decor. Cindy all the while trying to contain him in his room so that she can go clean up after him.

This afternoon is such a beautiful day, we decided to just go somewhere. James wanted to wear his "flops" his word for flip flops (when I was a kid we called them something that my kids won't let me say anymore). He wants to go buy "melelelems" a pronunciation of one of America's favorite candies M&M's that involves more tongue twirling action than anyone ever thought of. You have to see it to fully appreciate it.

Never a dull moment. James is busy and for the most part a happy boy from dawn to late at night. His latest request is to be able to paint. He is quite the artist. My favorite picture is his "robot". Maybe some art lessons would be a good way to direct his creativity and energy.

1 comment:

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First Entry

When our fifth child was born, Cindy and I embarked on a new journey that was not something we would have chosen.

We were expecting our fifth child and we knew it was a boy. When you are expecting a baby there are so many hopes and dreams for that child. We had chosen the name James for our baby. I love the name James. There is something very classic and dignified about it. There are more American presidents with this name than any other name. In the NT James wrote one of my favorite books and was the half brother of Jesus. Naming a child carries many hopes and expectations for his future. Fathers dream of their sons growing up and doing something of great significance. With these thoughts in mind, we had our name ready.

On July 1 James was born. They brought the baby out and I unwrapped him to count toes and fingers and make sure all was ok. Several hours later the anesthesia from the c-section was wearing off and Cindy asked to see our little guy. The nurse brought him in and handed him to me. I held him up for Cindy to see. She stroked his forehead and then asked, "Eddie, is he ok?". I assured her that he was fine. I had counted toes and fingers and they were all there. Then she said, "He just doesn't look like the other children." I felt this dagger go through my heart. She saw something that I had not. Even as I tried to assure her that her fears were unfounded, I knew that a mother's intuition is something that is not to be ignored. They took James back to the nursery.

Later that day we had the moment with our doctor all parents pray will never come. The door opened, our pediatrician walked in. The spirit in the room changed. The gate of her step, the tone of her voice and her demeanor alerted me that something was wrong. I asked if everything was ok. She responded that the baby was doing well, and then the pause. It was a pause that lasted forever, one that you felt in the depths of your soul. "The baby is doing well...but, there is something we need to talk about." And then the news we all pray we will never hear. "I think your baby has Down Syndrome."

Our lives changed forever that day. Having a special needs child is not a problem that gets resolved and then goes away. It is a heaviness, a burden, a challenge, a set of life time limitations, a fog of uncertainty that is never going to go away.

There is so much more to say about those first few days. That will be for another post. What we did not know, that we know now, is that with special challenges also come special joys. Within this world of imperfection and struggle are some very fun times. The truth is that God has and continues to teach me so many things through my special James.

I have learned that an infinite God does not just love the smart and perfect.
I have learned that love for a child is not more because one is smarter than the other.
I have also learned that you can be both retarded (it took me a long time to accept that word in reference to my son) and smart at the same time.
I have learned that there is a special charm that goes with special characteristics of a special kid.

I have called this "MyBopsBlog" because up until James was 11 years old, he referred to himself as "Bops". He learned to write his name in school. J-A-M-E-S, written on his paper and we would ask, what does that say? He would answer with great confidence "Bops". He would introduce himself "Hi, I Bops." Somehow, I always found it so charming. This year, "Bops" has given way to "James". Even though our little guy is growing up and can now say the name we chose for him, "Bops" will always have a special place in my heart.

He is always coming up with cute and fun statements. I hope to share some of those on this blog.

MyBopsBlog

Friday, March 21, 2008

Wear "flops" and buy "melelelems".

1 comment:

James Lyons

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